I heard on the radio this morning that the government has decided to cut funding for people afflicted by sickle cell disease. They need signatures on their petition in order to stop that from happening. Please go to sicklecelldisease.org scroll down the right side and click on the link to sign the petition. It will redirect you to the petition where all you need is your name, email address, and zip code. They will then send you an email to confirm your signature, simply click the link and it will be confirmed. Their aim is to get at least 100,000 signatures to get the ballot some traction… Their intent is as follows:
Reauthorization of the Sickle Cell Treatment Act – Bill H.R. 5124 will expand the national newborn screening program, develop a comprehensive adult transition program, continue public surveillance, expand research efforts and establish up to 25 sickle cell treatment centers throughout the US all in an effort to support the creation of a sustainable comprehensive model of care for individuals affected by SCD.
Please help our family and friends that need our help.